Support and research
Research is vital in understanding what causes genetic disorders and how they can be treated. Funding from Jeans for Genes is helping scientists across the country to carry out research into a wide range of disorders.
Researcher, the Institute of Child HealthWe help a range of charities each year to offer vital support and information to their members.
Finding out your child has a genetic disorder is a difficult and worrying time.
Being able to talk to someone who understands those concerns is very reassuring and families know they’re not alone.
Find out more about the services Jeans for Genes is helping to provide and the research we’ve supported.
Living with Fabry disease
Laura is 12 and looks like any other girl of her age. But she has Fabry disease, a genetic disorder which means she needs regular drug infusions to give her the energy to get through each day.
Watch her film below.
Giving hope to children with Sanfilippo disease
The research into Georgia’s condition. Read more »
“Our doctor is great but he knows nothing about my son’s condition!”
Finding out how to help health professionals deal with rare genetic disorders. Read more »
Wonderful Wendy
Jeans for Genes helps the Fragile X Society to fund a new post. Read more »
Coping with a newly diagnosed deaf child
How Jeans for Genes is helping to bring practical support to families. Read more »
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